Design and Implementation of Tabriz Stroke Registry in Northwest Iran

Tabriz Stroke Registry

  • Reza Deljavan Neurosciences Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
  • Mehdi Farhoudi Neurosciences Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
  • Homayoun Sadeghi-Bazargani Neurosciences Research Center, Department of Statistics and Epidemiology, Tabriz University of Medical Sciences, Tabriz, Iran
  • Masumeh Zamanlu Neuroscience Research Center, Qom University of Medical Sciences, Qom, Iran

Abstract

Objective: Stroke is a leading cause of mortality and disability worldwide, and more specifically, it is a
challenging issue in developing countries. Stroke registry is a beneficent infrastructure for clinical audits
of stroke, as well as related surveillances, epidemiologic studies, evidence-based medicine, and decisionmaking
processes for both clinical practice and health policies. However, few stroke registries have been
designed and implemented in Middle East developing countries.
Materials and Methods: Tabriz Stroke Registry (TSR) is a hospital-based prospective multicenter stroke
registry, being implemented in 2014 and officially initiated in early 2015 in North-West of Iran. The registry
structure was designed by a thorough literature review of the worldwide stroke registries, assessed by
an expert panel, and customized to Iranian culture and regional conditions in Tabriz. The software used
for the registry used to be offline for a while and is currently online. The registry was confirmed by the
Research and Technology Department, Iranian Ministry of Health (MOH) and approved by the local Ethics
Committee.
Results: Until now, the relevant data of almost 10 thousand stroke cases have been collected. The
collected data include demographics, pre-hospital information, EMS (emergency medical service), clinical
findings, primary imaging, lab findings, history of risk factors, drug history, discharge information, follow
up, Glasgow Coma Scale (GCS), Modified Rankin Score (mRS), National Institutes of Health Stroke Scale
(NIHSS), dysphagia, rehabilitation, complications, trainings and instructions, diagnoses, and treatments
(medical, surgical, and interventional) of stroke patients. They are being entered in the registry software
and the process of data collection still goes on.
Conclusion: Tabriz Stroke Registry has provided an efficient context for promotion of stroke care clinically
and in the related researches, and it can influence the level of these care in North-West of Iran as well as
in the national grounds.


Keywords: Stroke Registry, Registry Implementation, Stroke Epidemiology, Stroke Surveillance.

Published
2021-12-25
Section
Research Protocols